I know it’s been a while since I posted here, and I apologize. I’ve gotten more than a few queries asking, “Where’s Cindy? Is she okay?”
Instead, this is a health problem I was born with. It’s called Common Variable Immune Deficiency Syndrome or CVID. Don’t bother Googling it unless you’re fascinated with medical jargon. I’ll just summarize by explaining that a healthy immune system keeps you from succumbing to the bacteria lurking in that room-temperature mayonnaise you just slathered on your cheeseburger. And I don’t have a healthy immune system.
Beyond the tummy upsets, my CVID has led to far more profound consequences. Most memorable was the decade-long infection in the bones of my face and skull. That started innocently enough when I had my wisdom teeth extracted. Gee, thanks a lot Madam Tooth Fairy.
Since no vitamin or special elixir (sold via late night infomercial) can rejuvenate my immune system, I must resort to other measures. In the past, a nurse came to my house each month and administered antibodies directly into my bloodstream. I stopped that regimen once my health stabilized. This time around things have changed. Now I’m doing the infusions, aided by my mom, who fortunately happens to be The World’s Best (retired) Nurse.
Another change from my past infusion days is that I must do this every week. I fill a 35cc syringe with human antibodies that arrive pre-packaged in sterile bottles. Then I hook up some IV tubing, attach that to a trio of inch-long needles, stab myself three times in the stomach, flip the trigger on a little hand-held pump, and let the goo flow. Mentally I retreat to my Happy Place, which at this time is back-to-back episodes of “Judge Judy”.
The worst part isn’t sticking myself with the needles, it’s feeling crummy for a couple of days afterward as my body sifts through antibodies contributed by anonymous blood donors. Apparently my body deems some to be uninvited guests. It’s also unsettling to open my refrigerator and see vials of antibodies sitting on the top shelf. Somehow it never bothered me to store horse vaccines alongside the butter, but finding evidence of my physical limitations next to the lemonade is unsettling.
If I come off as whining or complaining, that is not my intent. I feel blessed that I have a health problem that can be addressed and managed. I think of myself as a reliable show horse that happens to have a few physical quirks. Just give me my Legend shots, my daily dose of joint supplements, and wrap my legs at night. I’ll be fine. Tack me up, trot me into the show ring and I’ll win another ribbon.
What I cannot do, however, is write regularly. I simply don’t feel well enough. In fact, I often don’t feel well enough to ride regularly. Since riding and being around horses is what prompts me to get out of bed each morning, you know I’m anxious to get better. So I’ll add to this blog whenever I can. In horse terms, I’m not quite out to pasture. Consider me relegated to stall rest and hand-walking.
Back to Life with Horses
Hey Cindy, hope you feel better soon. Sounds terrible. And if you’re like me, you don’t do too good on stall rest. I’d rather be galloping through the fields. Hope you get well soon.
I hope you feel better soon.
Feel better soon miss your blogs but health comes first so take care of yourself so you can get back in the saddle
Hey Cindy I am sorry you aren’t feeling well. I hope you get better soon so you can get back to Wally and Danny and write some blog posts, Get better soon 😉
I hope you are feeling better soon. I too suffer from an autoimmune disease. Every day is a battle. Continue to fight. Saying a prayer for you.
While I really really really miss your blogs I totally understand feeling sick. Take care and get better so you can 1st get back in the saddle, 2nd write your great blogs!!
Thanks for your comments and good wishes. I feel like I got some Hallmark cards!
I happen to feel up to riding Wally today, so I’ll give him a pat from all of you.
Cindy (and Wally)
I’m sorry that you have gone through what you did, and I hope you feel better. Good luck.
I’m sorry to read you are having to endure this disease/illness. I’ll say a prayer for you. Horses saved me when I was a young girl, & Cookie is the best in the world! Somehow, horses are the missing medicine in our lives. Stall rest isn’t so bad… as long as you realize at some point, it’s no longer stall rest. 😉 Love life & horses & count your everyday blessings.
I’m so sorry about this news, Cindy. Take heart, life could be so much worse. Glad that you have a manageable issue and I do hope you are feeling better soon and back in the saddle. I’ll be praying for you~
Bless you I hope everything is all right now!
I admire that you feel grateful during this time. I hope by now you’re feeling better!